Rhema continues to go to PT weekly. We’ve seem to hit a plateau and are meeting soon with her two therapists to talk about where to go from here. Since her surgery she has just not bounced back and they explain that she kind of had a double-whammy happen: several months of casts which atrophied her muscles and a HUGE growth spurt. We are just not seeing Rhema progress like we’d like her too. I’m still not happy to see Rhema’s lack of response to her therapists and also her lack of upright mobility. She was doing SO well prior to her surgery; it’s really been disheartening for me. So, we are meeting soon to discuss changes to her therapy goals and some additional bracing she may need during this rebuilding time.
Rhema was fascinated with this jump rope so we let her “jump” with is for a while between sessions. She had a blast jumping on her knees and “jumping rope”. I got some video of her glee as she would flick the handles and then jump; no one had the heart to tell her that she was not actually “jumping rope.” She was just having too much fun! It was fun watching her but it was bitter-sweet. On the one hand she was happy and having fun; she was oblivious to the truth that she cannot do this game like her peers. On the other hand my momma-heart hurts in knowing that one day she will know that she is different and know that she cannot do this child’s game like her peers. I had to remind myself to take her lead and stay in the moment. In this moment she is happy and having fun — I need to do the same. When that horrible day comes, and she has sadness or even anger over not being able to jump-rope like her peers, then on THAT day I will experience that with her too. We will get through each and every high and low together, with God’s Grace, and my prayer is in each moment I will know what to do and how to help her process things. Honestly, on more days than I’d like to admit, I find myself at a loss on how to process all this. It’s the little things that get me. I’m thankful that even in my weak moments, God is there to help me process things and help me when I’m feeling sad.
Even though Rhema still requires a lot of help for dance class, she really does enjoy it. They have a new teacher with all new music so I can tell this has thrown Rhema off a bit and she is more tentative. Graciously, the dance teacher is going to make me a CD of the songs where we can listen to them at home and get her adjusted to the changes more quickly.