Okay, this is not what we expected…. the twister cables are mainly metal and Rhema is not moving too well in them. Rhema pretty much cried the first day when she had to wear this new contraption. Yes, her feet are straight, and she does have more support to stand, BUT she cannot crawl — she drags her legs, she has not yet pulled to stand — not sure she can, does not kneel — not sure she can!!! It’s so frustrating! We’ve waited so long to get something for her legs/feet to make them straight, but did NOT anticipate all these complications. I spoke with the company who makes the cables to get some explanation as to why there is not more of the “flexible cables” and they walked me through online all the parts to her twister cables. Basically the gist is because she is so small the actual “flexible cables” are so tiny (like 2 inches) so, the majority of the gear is made up of the metal connectors. So, the reality is if she was older there would be more flexibility, but for now we are stuck. Rhema has clinic next week and we will determine if she will keep the cables or if we will go back to the drawing board so to speak. The bottom line is the “dancing pants” and the “twister cables” are just temporary fixes for the problem; the only solution is the “de-rotational distal tibia osteotomy” surgery. This is huge surgery and we’ve been told from start to finish it will take her 9 months to a year to fully recover from it! I’ve been in knots over this whole thing and we all need much prayer. Next week’s clinic is where all of this will come to a head and we will make some next-step decisions. Much prayer is needed so we wanted to get a report out to preface next weeks upcoming meetings with Rhema’s medical team.
Blessings to you all and we will post an update before clinic next week with targeted prayer needs….